tag:blogger.com,1999:blog-78782417915145319912024-03-08T03:20:15.046-08:00No Stomach No Problem: My CDH1 JourneyCourtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.comBlogger61125tag:blogger.com,1999:blog-7878241791514531991.post-301604636103738882022-07-31T09:17:00.000-07:002022-07-31T09:17:01.481-07:00A Day in the Life - seahorse edition<p><span style="font-family: "Helvetica Neue"; font-size: 13px;">I’ve gotten my eating and drinking routine down pretty good now. I have a really good grip on what helps me feel my best and what doesn’t. Today I’m going to share my typical meals for the day. As well as some little tips and tricks I’ve found helpful for me.</span><span style="font-family: "Helvetica Neue"; font-size: 13px;"> </span></p>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">5:30am </p>
<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">Wake up and start sipping on ice cold water right away. Ice water goes down best for me. Room temp water tends to make me nauseated</p>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">8am </p>
<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">Eat breakfast. These days my breakfast is a chia seed pudding </p>
<ul>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>3/4-1cup RAW milk</li>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>2 tbsp chia seeds</li>
</ul>
<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">Let sit overnight in the fridge</p>
<ul>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>sprinkle of cinnamon</li>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>3 tbsp hemp seeds</li>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>2 tbsp pecans</li>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>Appx 3/4 cup fruit. It varies depending on what I have on hand. Fresh or frozen berries, mango, apples, peaches, and bananas are a few of my favs</li>
</ul>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">9am </p>
<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">I start sipping on my protein/coffee concoction</p>
<ul>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>1/2 cup coffee</li>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>1/2 premiere protein or Fairlife protein</li>
</ul>
<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">I like the chocolate or salted caramel</p>
<ul>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>1 scoop of Inner Beauty Collagen</li>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>Sometimes I’ll enjoy homemade banana bread while drinking my coffee</li>
</ul>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">After this morning routine, my day kind of flows depending on what’s going on. I’ll give some examples of what time I eat and the foods I eat below. One of the things I learned over the last few years is the quality of my food matters. When I eat good, nutritious food, I feel my best. And when I’m not eating, I’m focused on hydrating. Drinking water all day long. </p>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">11am </p>
<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">Snack time. Sometimes I skip this one depending on when I’m going to eat lunch. </p>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">1pm </p>
<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">Lunch time. Make sure I get a good about of protein with whatever I eat </p>
<ul>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>Salad</li>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>Sandwich</li>
</ul>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">2pm </p>
<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">Afternoon beverage time. I drink Ningxia Red every single day, no matter where I am or what I’m doing. It’s packed full of amazing ingredients with tons of antioxidants, vitamins, minerals, and amino acids. Depending on where I am, I’ll add in more nutritional supplements to my daily treat. </p>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">4pm </p>
<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">Snack time. Sometimes I skip this one depending on timing of dinner</p>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">6pm </p>
<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">Dinner time. Since I work 3 days a week at the hospital, I’m not home for dinner on these days. So I try to bring leftovers. Sometimes it just looks like apples with peanut butter/nut butter. When I’m home, I try to cook dinner every night off. Good balanced dinners with good protein and veggies. </p>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">8pm </p>
<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">Bedtime snack. My go to is avocado toast. Sprinkle some hemp seeds and hot sauce on top. With a side of plantain chips usually.</p>
<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">I’ve found when I eat some sort of bread (I use homemade sourdough or GF) before bed, I have less incidence of bile reflux. Weird, I know. I remember talking to a ‘seahorse’ before getting my stomach removed and she told me that her trick for not having bile reflux at night is to eat a Hawaiian roll and drink a glass of milk before bed. I don’t know why, but that has always stuck with me. Maybe there is something to eating bread before bread to avoid the bile reflux.</p>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">Snacks:</p>
<ul>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>2 hard boiled eggs with clementine</li>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>2 tillamook snack cheeses with clementine</li>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>Almonds with gf pretzels</li>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>Hummus and veggies/crackers</li>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>Pistachios</li>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>Apples with peanut butter/but butter. I love the RX nut butter packets to take on the go</li>
<li style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;"><span style="font-size: 12px; font-stretch: normal; line-height: normal;"></span>Beef sticks (Archie’s) with clementines</li>
</ul>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">The protein intake is super important for me because if I don’t eat enough protein with a carb, I get reactive hypoglycemia or late dumping about 2 hours after I eat. It’s not fun to have a super low blood sugar nor is it good for our bodies. Having a roller coaster of blood sugars can cause a lot of damage in the long run. </p>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">I think it’s important to remember that everybody is different and responds differently to different things, so what works for me may not work for you. </p>
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<p style="font-family: "Helvetica Neue"; font-size: 13px; font-stretch: normal; line-height: normal; margin: 0px;">I hope you found this helpful or informative. <span style="font-family: ".Apple Color Emoji UI"; font-stretch: normal; line-height: normal;">♥️</span></p><div><span style="font-family: ".Apple Color Emoji UI"; font-stretch: normal; line-height: normal;"><br /></span></div>Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-81334910989428100162022-07-03T11:24:00.000-07:002022-07-03T11:24:11.324-07:00Being Social with Food<p> With 4th of July being tomorrow I thought this topic was fitting. When we gather with friends and family, there is often food involved. Early in my stomachless journey this would cause some anxiety for me. When you are so used to socializing a certain way and that changes just because of your eating habits, there is a learning curve. So while teaching my body how to digest food in a different way, there was another lesson to be had.</p><p>How to be social around food. When you don't have a stomach its pretty important to chew your food ALOT. Think, no stomach = no stomach acid to break down the food. So my teeth and saliva are what do the majority of breaking down my food. When you're focused on chewing your food, it can be difficult to be social, talk, and interact with people. I've found just being open and vulnerable has been the best way. Letting people know I'm not talking a lot for this reason. Or if I'm talking with food in my mouth, this is why. Simply giving a hand gesture to wait for my response. </p><p>I used to wonder what people thought of all this. But life's way too short to worry about that. I'm doing what I need to do to take care of my body the best way I know how. And it's doesn't really matter what people think of it.</p><p>Just like when I have a plate half empty because I know I'm not going to be able to eat a ton. People who don't know me say things like "is that all you're going to eat?" I used to find myself getting defensive to this. But I know it comes from a genuine place of curiosity. People see how thin I am and how much food I put on my plate. It's all good. Then they see me go back for more in a couple of hours and wonder to themselves "I'm still stuffed and she's eating again?" Kind of goes back to the idea that we shouldn't judge others. We often don't know what they are going through. There's no sense in creating shame, when we can be building each other up. </p><p>It does get a bit annoying needing to think about food ALL the time. But I embrace it most of the time. I know I feel best when I eat often and fuel my body with good food. And I want to feel good. So if that's what I gotta do, that's what I'll do. When we take care of ourselves, our bodies take care of us. This month, I'm really focusing on self care. What does that actually mean? How do we accomplish it? You can find me on Instagram @the_eo_seahorse to follow along. </p><p>So for those of you who are feeling a bit anxious about socializing for the 4th of July for one reason or another. You got this. The more I've done it, the better it's gotten. And I believe it will for you too. Sometimes when we are the most uncomfortable are the times we are going to learn the most from. Lean into that discomfort. You might be surprise what you learn from yourself. </p>Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-76862283605737757582022-05-17T12:53:00.003-07:002022-05-17T14:08:56.318-07:00Chronic Health Condition<span style="font-family: inherit;"><br />This may sound crazy considering I chose to remove my stomach over 3 years ago. But over the last several months I am accepting the idea/fact that I have a chronic health condition. Let me </span>explain<span style="font-family: inherit;"> bit.</span><div><span style="font-family: inherit;"><br /></span></div><div>Early March, I flew back to Maryland for my 3 year post-gastrectomy follow up appointment. Leading up to this I was feeling great. Good energy. Maintaining weight. Hair growing back. So many good things. At these appointments they draw labs for so many different nutritional things. One of them being iron levels. For those of us without a stomach iron is not as easily absorbed. Our intestines are routed differently. When they remove the stomach they also do something called a Roux-en-y. It's very common in bariatric surgeries as well. Here's a graphic showing the difference in anatomy of somebody with a stomach vs somebody without. Anyway, when they do the roux-en-y, the duodenum (the first part of your intestine) is routed a different way to stay connected to your common bile duct among other things. To allow your liver, gallbladder, and pancreas to still do their job.</div><div><br /></div><div><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEga2V5l8j0OWveEqwcNlMZQaq1AX-BEO0hfUNlUstBYTbFtlng6HTWuRif4aOwu9m5vS2giT_2C1JvwpNkpQFyRP9qUpugLVR6XtMrDf5N1Gfu8H1qPf8_TYwt1S9sVlMaJZLfvjoaKHshcx_e07h4G6p600L3x1oKtPB3xKsYYURvNZRViQEvfs3Fr/s1200/E902678A-E8EB-40DA-950F-54FD7D75C439.jpeg" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="794" data-original-width="1200" height="212" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEga2V5l8j0OWveEqwcNlMZQaq1AX-BEO0hfUNlUstBYTbFtlng6HTWuRif4aOwu9m5vS2giT_2C1JvwpNkpQFyRP9qUpugLVR6XtMrDf5N1Gfu8H1qPf8_TYwt1S9sVlMaJZLfvjoaKHshcx_e07h4G6p600L3x1oKtPB3xKsYYURvNZRViQEvfs3Fr/s320/E902678A-E8EB-40DA-950F-54FD7D75C439.jpeg" width="320" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Image from <a href="https://www.nexussurgical.sg/upper-gastrointestinal-surgery/stomach-cancer/">https://www.nexussurgical.sg/upper-gastrointestinal-surgery/stomach-cancer/</a><br /><br /></td></tr></tbody></table></div><div>Well, the duodenum is responsible for a lot of our iron absorption. Now that my duodenum is re-routed, my food and supplements do no pass through it. Making it a little challenging to absorb iron. So the first 3 years without a stomach, I knew it was important to be diligent with taking my iron supplements. But I didn't fully understand why. At least I don't remember paying much attention to it early on. So, they checked my iron levels in March and they were the lowest they have ever been. They gave me an iron infusion. It was a bit of a whirlwind as I planned my trip to be less than 24 hours because I didn't want to spend any more time there than I needed to.</div><div><br /></div><div>Let me digress for a minute. Early on this adventure, when I first learned about my genetic mutation, I was all about making a 'vacation' out of going to Maryland and the NIH. Why not make the most of it? Right? Last year, I went by myself. Which is totally fine. I'd gone solo before and actually kind of the enjoyed the alone time. But it was different last year. COVID has really changed the atmosphere. I didn't feel safe riding the Metro alone in the evening going from the airport to my hotel. It's hard to explain on paper, but I didn't like it. So this year, I opted into an overnight flight so I wouldn't need to navigate the city after dark. </div><div><br /></div><div>Okay, so adding on an iron infusion to my already jam packed day was craziness. Rushed to the airport, with some time to spare thank goodness. However, I did leave my AirPods at the hospital. DOH! Thankfully the staff is amazing and sent it Fedex that day and they arrived on my doorstep the next day. Which is insane to me. The bummer part was I didn't have them for the 5 hour flight home. Thank goodness I had a good book to read. Phew!</div><div><br /></div><div>Okay, so after needing the iron infusion it really started sinking in that I am going to be living with chronically low iron the rest of my life. That has not been an easy pill for me to swallow. Accepting the fact that I have a chronic health condition has not been easy. This whole time I've been trying to be 'normal' Trying to prove to myself and others that living without a stomach is no big deal. People do it. Seahorses do it. ;)</div><div><br /></div><div>Maybe that had been my way of coping. Coping with the fact that I had the possibility of getting the deadly cancer my dad had. Maybe it was the only way I could cope while making the decision to take my health into my own hands by eliminating that possibility. Telling myself, it's no big deal. Lots of people have done it so why can't I? In the moment, I felt I was doing my due diligence to ask all the questions, research all the things, interview many surgeons, watch other people who had gone though the same thing. Trying to eliminate all possibilities of future complications and such. I mean I had list of questions for the surgeons that was a mile long. I had it printed out on several pieces of paper. One for each surgeon I would interview. To make sure I was asking them all the same questions and taking notes so I could compare the pros and cons to each one. I was very active in the CDH1 facebook group leaning as much as I possibility to be the most prepared I could be going into this new chapter. </div><div><br /></div><div>Sometimes, you do all of those things to prepare yourself. But none of those things actually prepare you in all the ways. There's always something you can't foresee. We are constantly growing, evolving and learning new things. It's kind of like becoming a parent. You can read all the books, take all the classes, but when that baby comes is when you really start to learn. </div><div><br /></div><div>So I've learned through this whole process, just do the best you know how to do today. Try not to stress about the future. We can plan for the future, sure. But it's not worth our fight or flight response to get all worked up about and stress about what might happen in the future. My dad actually always told me I worried too much. Growing up, he would ask me "what are you thinking about? What are you worried about?" I always thought he was crazy. "He doesn't know me at all". Haha. Looking back, he knew me better than I realized and better than I knew myself. So now, at almost 38 years old, I'm learning how to protect that fight or flight response. I now know how stress can so negatively impact our bodies. And I'm not about that. Especially chronic stress. Even at low levels. Anyway.</div><div><br /></div><div>I am so unbelievably grateful to have had the opportunity to make the decision to remove my stomach. Now I can say, I will never get the deadly cancer that killed my dad far too young. I just wish he had had the same opportunity. I miss him greatly. </div><div><br /></div><div>Do you have a chronic health condition your'e struggling with? I'd love to chat/connect with you. Sometimes it helps just to talk with someone who can relate a little. You can leave a comment here, or find me on instagram @the_eo_seahorse.</div><div><br /></div><div>Be well and take care.</div><div><br /></div><div><br /></div>Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com2tag:blogger.com,1999:blog-7878241791514531991.post-89635814739279392872021-04-20T22:00:00.000-07:002021-04-20T22:00:10.665-07:00Recovering<p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">It’s been 3 weeks now since my last surgery. <span class="Apple-converted-space"> </span>It’s amazing what 3 weeks can do. 3 weeks of taking care of myself — eating, hydrating, walking, napping in the hammock, reading, gardening, much alone time, time in nature, enjoying our amazing weather, and the list goes on. It can be challenging to ‘rest’ since we are so used to the hustle and bustle that is life. But yet again I find myself learning to enjoy this quiet time and accept it. And not just accept it really. <span class="Apple-converted-space"> </span>Too embrace it. <span class="Apple-converted-space"> </span>Really lean into it. <span class="Apple-converted-space"> </span>Which is really kind of freeing and liberating. <span class="Apple-converted-space"> </span>Some days I focus a little more on the to do list while other days I just do what my heart so desires. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">When I wrote that first sentence ‘it’s been 3 weeks now since my last surgery’ I can’t help but focus on the word ‘last’. <span class="Apple-converted-space"> </span>This was the best word I could came up with to accurately and efficiently describe which surgery I was talking about. Which blows my mind. My entire life, I’ve been a pretty healthy person. Every time I would go to a new doctor it would take just a minute to tell them my very small medical history. I was so proud of never having surgery and not taking any medications. <span class="Apple-converted-space"> </span>Now when I go to a new doctor I feel I should take a sheet of paper with everything on it to make sure I don’t forget something. <span class="Apple-converted-space"> </span>I’ve now had 5 surgeries in the last 4 years. <span class="Apple-converted-space"> </span>And while I still don’t really take any medications, I need to take several supplements. <span class="Apple-converted-space"> </span>Crazy how life takes you on journeys you never would have thought you’d be on. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Last week I had a breast biopsy. <span class="Apple-converted-space"> </span>To back track a bit, before I left for Maryland, I got a call telling me my recent mammogram showed some questionable spots so they wanted me to follow up with an ultrasound. <span class="Apple-converted-space"> </span>Once I got the ultrasound the radiologist came to talk with me. <span class="Apple-converted-space"> </span>The spots looked like cysts but because of my 42% lifetime risk of developing breast cancer, she wanted to biopsy it. <span class="Apple-converted-space"> </span>Of course I cried at first because I cry about everything. <span class="Apple-converted-space"> </span>But it didn’t take me long to agree with that advice. Better safe than sorry, right? <span class="Apple-converted-space"> </span>This is what surveillance is about. Better to catch things early rather than late. <span class="Apple-converted-space"> </span>The biopsy was super smooth. <span class="Apple-converted-space"> </span>The medical professionals were amazing. You can tell they truly care. <span class="Apple-converted-space"> </span>The radiologist called me the following day to let me know it was benign. <span class="Apple-converted-space"> </span>Literally as soon as I hung up with the radiologist, my gynecologist called me. <span class="Apple-converted-space"> </span>Yes, the one who convinced me to get genetic testing in the first place. She wanted to let me know the biopsy was benign. <span class="Apple-converted-space"> </span>Thank goodness!! <span class="Apple-converted-space"> </span>I really wasn’t concerned about it based on what they told me from the ultrasound, but it weighs on your mind a bit, ya know. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">The reason I even bring this up is because I do have the option to have a prophylactic double mastectomy. <span class="Apple-converted-space"> </span>I’ve never been opposed to it. I’ve always known my breast cancer risk is higher than the general public and that I could do reconstruction if that was the route I chose to go. But in the last year or so I’m realizing I don’t really want reconstruction, which is really difficult. I have no interest in having any foreign bodies in my body if I can help it. <span class="Apple-converted-space"> </span>And some of the options I’m not even sure are viable options for me since being so thin from the gastrectomy. So, I need to get in to see a high risk breast specialist. Just to talk everything out. Might as well have a relationship with them now just in case I need them. <span class="Apple-converted-space"> </span>So I’m thinking that’s the next step in this crazy CDH1 journey. <span class="Apple-converted-space"> </span>And right now, I just can’t even imagine having yet another surgery. Especially since breast cancer is so much better screened for than diffuse gastric cancer. <span class="Apple-converted-space"> </span>So for now, I’m choosing surveillance every 6 months and we’ll see where that takes me. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Back to recovering. Sorry, I’m a bit all over the place. Had a virtual follow up wait my surgeon today. <span class="Apple-converted-space"> </span>That went well. He confirmed I need to take the full 8 weeks off to fully heal. My risk for incisional hernia is pretty high because they’ve now opened my belly up 3 times in the same incision. <span class="Apple-converted-space"> </span>So we discussed some exercises that are safe since I’m going a bit stir crazy here. Going to try a decent inclined short hike tomorrow and see how it goes. <span class="Apple-converted-space"> </span>It’s going to be great!</span></p>Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-12740032547227201652021-04-02T08:27:00.000-07:002021-04-02T08:27:05.648-07:00Hallelujah <p><span style="-webkit-text-size-adjust: auto; font-size: 17px;">Yes!</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">We finally get to go home!</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">What a week it has been. Saw the team this morning and the one lab they were keeping a close eye on is drastically better than just a couple days ago. They pulled the abdominal drain!</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">I’ve never had one before and wow what a weird feeling that was.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">It was like my body was so relieved to have it pulled out. Like a little pressure at first. And then some more pressure. And then almost a popping feeling. The only thing I can think of to compare it to is to having a baby. All the pressure the baby is putting on all of your lady parts. And then the ring of fire right before babies head pops out. And then that feeling of release when the head makes it out. Hallelujah!</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">Haha. Obviously today was not near as intense, as special, or as painful as having a baby, but there you have it. Haha.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">So we’re just hanging out before we head to the airport. Taking it all in. Reflecting a bit. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Thank you for all the kind words, words of encouragement, and all your thoughts, prayers, and positive vibes! <span class="Apple-converted-space"> </span>Our tribes are so important when we’re going through rough times and I’m so lucky to have such an amazing one.</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Also, I know things could be so much worse and I am so grateful I am where I am. <span class="Apple-converted-space"> </span>And even that I’ve gone through what is a lot. It’s only going to make me stronger and live life to the fullest. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">“The best view comes after the hardest climb”</span></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;">- Author unknown</p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Don’t know I’ve made my hardest climb in life, but I’ve definitely seen some amazing views. <span class="Apple-converted-space"> </span></span><span class="s2">♥️</span><span class="s1"> </span></p>Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-41420365624491970832021-03-31T15:57:00.001-07:002021-03-31T15:58:04.651-07:00No Stomach No Problem? Really??<p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">I really should have updated this on Monday. I’m so sorry I didn’t. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">After the MRCP I immediately met with my Dr. He could see what looked like to be a stone in the common bile duct. The only real option for somebody without a stomach is to have another surgery to get it out. <span class="Apple-converted-space"> </span>He reached out to some of his GI friends who do ERCPs everyday and they said ‘there is no way, that is extremely technical because of the anatomy’. <span class="Apple-converted-space"> </span>We talked for a while with him and felt a bit of a relief. <span class="Apple-converted-space"> </span>We know what’s going on. We know how to fix it. So I got on the OR schedule for Tuesday morning. <span class="Apple-converted-space"> </span>And Dr Davis said I could stay the night in the hotel as long as I was back at 7am. Which made me extremely happy. Matt and I walked back to the hotel - it’s about one and half miles. The weather was beautiful. <span class="Apple-converted-space"> </span>We got to see all sorts of flowers blooming and like I said I felt like a weight had lifted off my shoulders. <span class="Apple-converted-space"> </span>Got to the hotel, ate some dinner, took a nice shower, and went to bed. Sleep very well. Woke up before my alarm, which never happens by the way </span><span class="s2">🤣</span><span class="s1">. <span class="Apple-converted-space"> </span>And was ready to go. Packed up all my stuff prepared for another night stay in the hospital. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">We got through preop farely quickly and off to the OR I went. <span class="Apple-converted-space"> </span>This procedure was anticipated to only take about 30 mins.</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">As I was slowly waking up in PACU I start comprehending what people are saying a little more. <span class="Apple-converted-space"> </span>I hear somebody tell me I have a foley catheter. <span class="Apple-converted-space"> </span>Then somebody mentions a drain. <span class="Apple-converted-space"> </span>As most of you know, waking up from anesthesia can be a bit of a blur. I don’t know how or when I learned the surgery took 3 1/2 hours. <span class="Apple-converted-space"> </span>Or that I will go home with the JP. <span class="Apple-converted-space"> </span>The stone was nowhere to be found....again. <span class="Apple-converted-space"> </span>So my surgeon decided to do something to prevent a stone from getting stuck in the bile duct again. So we wouldn’t be doing this again in the near future. <span class="Apple-converted-space"> </span>Thank goodness! <span class="Apple-converted-space"> </span>I’m so grateful he made some decisions while in there to be proactive and not just decide to close me up. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">But what I do remember is a feeling of overwhelming despair. <span class="Apple-converted-space"> </span>Not that surgery didn’t go as planned. Not that I would need to go home with a drain. <span class="Apple-converted-space"> </span>Not about anything from today. An overwhelming despair that this is my life. And feeling like my life will forever be a medical mystery and there’s nothing I can do about it. <span class="Apple-converted-space"> </span>I described it to Matt, my mom and my Dr that it felt like I was in a downward spiral of a tunnel that just kept getting faster and faster and there was no way out. And the rest of my life was going to be this way. <span class="Apple-converted-space"> In and out of the hosptial. Always needing surgeries. Not feeling how I want to feel - healthy! </span>I feel like normally I’m a pretty optimistic person and always looking for the good and positive in things. But last night I didn’t give a SHIT. <span class="Apple-converted-space"> </span>I know I said many things that scared and worried many people. <span class="Apple-converted-space"> </span>I told my Dr that I not mad at him or how surgery went. And I’m not. Everything he did while in there was thorough and understandable. <span class="Apple-converted-space"> </span>The stone was nowhere to be found....again. <span class="Apple-converted-space"> </span>So my surgeon decided to do something to prevent a stone from getting stuck in the bile duct again. So we wouldn’t be doing this again in the near future. <span class="Apple-converted-space"> </span>It all makes sense to me. <span class="Apple-converted-space"> </span>I told him I am mad at the world. <span class="Apple-converted-space"> </span>I told him he should be glad he wasn’t present 2 hours earlier when I was really steamed up. Matt, in his very rational mind, kept reminding me I just to sleep. <span class="Apple-converted-space"> </span>Dr Davis asked me if I wanted some Ativan to take the edge off emotionally overnight. I told him I didn’t. I said I need to work through all these emotions now while I’m having them since I can now (being here and not having much to do - well, other than heal up and all that’s involved with that). Better to deal with it all here than when I get back home and I’m with my wonderful kiddos. <span class="Apple-converted-space"> </span>He asked ‘are you sure? with an eyebrow raise. <span class="Apple-converted-space"> </span>I know he was worried about me too. When he left the room I took Matts advice and I slept. <span class="Apple-converted-space"> </span>I have no idea how long, but I know he sat in my room with me the entire time. <span class="Apple-converted-space"> </span>I have to add, in my fit of rage and despair, he really stepped up. <span class="Apple-converted-space"> </span>In ways I’ve never seen him have to do before. <span class="Apple-converted-space"> </span>In the moment I told him he was bossy, but I know he was doing and saying all the right things to help me. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">So after a good rest, I woke up more rational and feeling like everything is going to be okay. <span class="Apple-converted-space"> </span>I cried. I mean I’ve cried a lot. And that is okay. I was determined to let myself feel all the feels no matter what they were. <span class="Apple-converted-space"> </span>I’m still crying a bit this evening. <span class="Apple-converted-space"> </span>The sadness is not going to disappear in an instant. But I have really improved today. I got a REALLY good nights rest thanks to an amazing nurse. You can still be a thorough night nurse with good patient care and allow your patients to rest. <span class="Apple-converted-space"> </span>I woke up this morning still feeling pretty down and unmotivated. They forced me out of bed at 7am. <span class="Apple-converted-space"> </span>Sat in a chair for a few hours before doing much else. Several people, but mostly my mom and husband really pushed me. They told me ‘you know what you need to do to get out of there’. At the moment I didn’t even care. I didn’t care to get out of here. I would find myself just staring into space at times. <span class="Apple-converted-space"> </span>There was also a provider (one who actually kind of knows me by now) who came in to check on my pain and realized I wasn’t okay. He sat down with me. He took the extra 3 minutes to have a chat and be real. And he had many good suggestions. Acupuncture. <span class="Apple-converted-space"> </span>Massage therapy. <span class="Apple-converted-space"> </span>Guided imagery. <span class="Apple-converted-space"> </span>He asked if I was interested and I said absolutely but that I know their schedules are hard to work around. He said ‘it doesn’t matter. <span class="Apple-converted-space"> </span>I’m going there right now to light a fire’. And he did. Within 30 mins more people showed up at my door. Including a kind of counselor person. She sat and talked for about an hour with me. <span class="Apple-converted-space"> </span>It has been so validating to feel heard. Not one person tried to brush off how I was feeling. Not one. Every single person I’ve encountered today has let me feel my feeling. Has let me cry. <span class="Apple-converted-space"> </span>And because of that has given me hope. <span class="Apple-converted-space"> </span>I was never worried about healing physically. <span class="Apple-converted-space"> </span>I was extremely worried and still am a little about healing mentally and emotionally. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">But it’s nearing the end of the day here and I feel accomplished. I’m so many ways. <span class="Apple-converted-space"> </span>I went from not caring about much this morning. I mean, I had a foley and didn’t care. Yuck. To now being ready to say goodbye to the PCA and hello to oral pain meds. So hopefully tomorrow I can be discharged and stay the night in the hotel again with Matt. <span class="Apple-converted-space"> </span>I gotten lots of walking in today. My appetite is coming back to I’ve eaten a good amount. I’m still working on hydrating, but we can’t do everything at once, right. Glad I have IV fluids still. Haha. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">So just to wrap this up. Anybody going through a rough time. It’s okay. Let yourself feel all the feels. And if that becomes to much don’t be afraid to reach out to somebody. Anybody. <span class="Apple-converted-space"> </span>I know the best medicine for me right now is walking, talking to my family, laughing, and being able to at least see the outdoors. <span class="Apple-converted-space"> </span>But sometimes we need actual drugs to help us. And that’s okay too. Everybody is on their own journey. And we are all doing the very best we can. Let’s give ourselves grace and kindness...everyday. <span class="Apple-converted-space"> </span></span><span class="s2">♥️</span></p>Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com2tag:blogger.com,1999:blog-7878241791514531991.post-48272156445788191052021-03-29T10:49:00.001-07:002021-03-29T10:49:26.445-07:00Big Updates<p><span style="-webkit-text-size-adjust: auto; font-size: 17px;">Well, the last week has been a bit of a whirlwind.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">Sunday, March 21, my pain came back within 30 minutes of eating my avocado toast as my bedtime snack.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">My husband was able to massage my back and bit as I laid on my heating pad and it subsided for the most part. Thought I was in the clear. Monday morning I woke up feeling pretty normal. My mid to upper back was a bit sore but I didn’t really think anything of it. As I was driving to work I did my usual (since I have a decent commute) by drinking some water and then eating breakfast. Within 20 minutes the pain returned. I got to work, then immediately turned around to try to get back home as soon as I could. I almost made it, but had to stop along the way to wait for a ‘bad’ point of pain. So eventually I made it home and rested on the heating pad. Had pain on and off all day. Didn’t really eat much because I was afraid to. Just tried to stay hydrated.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Same thing was happening on Tuesday so I called my surgical team to hear their thoughts. Oh, I should add that on Monday I realized the pain was more localized on my right upper abdomen instead of my left (which is where the pain usually is). And Monday night I realized I had some leftover pain medication I could try. So I did and it helped tremendously. I was able to sleep and woke up feeling rested. <span class="Apple-converted-space"> </span>Okay, so talked to the surgical team on Tuesday. They said since the pain meds were helping to wait and see how I was feeling on Wednesday. <span class="Apple-converted-space"> </span>So I did. It wasn’t getting better. I couldn’t take it anymore. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">So I went to the ED. Very good, quick experience. <span class="Apple-converted-space"> </span>Upon ultrasound of my right upper abdomen, they found 2 gallstones in my common bile duct. Ugh. In a person that has their stomach they would just do an ERCP. Which is basically a scope through your mouth, they find your gallbladder and common bile duct and fish those stones out of there. Since I don’t have a stomach my anatomy is way different and makes this procedure much more complicated. <span class="Apple-converted-space"> </span>So I immediately talked to my surgeon at the NIH. <span class="Apple-converted-space"> </span>Upon very little thought and discussion we decided it was probably best for me just to fly out early and get this figured out. I was supposed to fly out Sunday, March 28 for my 2 year check up anyway. So Matt (my husband) and I just hustled and got everything ready to fly out Thursday morning. <span class="Apple-converted-space"> </span>Got to the NIH around 7pm where they admitted me and did al the things they needed to do for me to be ready for an MRCP on Friday morning.</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Immediately after the MRCP, the MRI tech informed me they needed me in preop right away. <span class="Apple-converted-space"> </span>Since my husband wasn’t allowed in the hosptial with me, I was trying to coordinate with him and how to get in for the procedure and find out where he was. I guess he had been looking fore when I was in the MRCP and getting a bit anxious...understandably. I think at one point he thought I had gone to the OR already. So anyway, him and I met up in preop. Phew. Surgeon explained everything they were going to do in the OR and off and went. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Well, the procedure did not exactly go as planned. Those stones were being very stubborn so he had to reopen part of my old incision for the Lego a gastrectomy surgery. <span class="Apple-converted-space"> </span>He tried for 2 hours before deciding to do so. Seriously, he’s the best. What other surgeon would have done that? <span class="Apple-converted-space"> </span>In the end I think he was very disappointed in how everything went. He thought he got the stones out but didn’t actually visualize the stones leaving the bile duct. Did his best to confirm and closed me up. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">I’m in the hospital post op and they are keeping very close eyes on my liver function. Some levels started to go up immediately after surgery. Then started to go down on Saturday. So we all felt a bit better about that, but decided it would be best to stay one more night. Sunday, I got discharged from the hosptial and stated the night in the hotel with Matt. We hadn’t physically seen each other for almost 48 hours. Weird for us. Haha. It was nice to take a shower in the nice hotel shower, wash my hair, be in a comfortable bed. <span class="Apple-converted-space"> </span>All the things. <span class="Apple-converted-space"> </span>I woke up this morning (Monday) feeling ready to take on the challenge of getting back to my hydration and eating routines. <span class="Apple-converted-space"> </span>I needed to go back to the hosptial to get a DEXA scan (part of the yearly checkup) and get my liver labs checked one last time. So did those things, then just sat outside for over an hour enjoying the beautiful morning while I ate a little breakfast. Matt was doing work stuff (when he’s not there he still needs to run things from afar which is not easy for him - it can be very stressful at times). There we were just soaking in the morning. <span class="Apple-converted-space"> </span>Then I get a call from the surgical fellow that my bilirubin levels spiked up higher than they been at all. My heart dropped. Does this mean they didn’t get the stone that was really stuck in there? <span class="Apple-converted-space"> </span>Does this mean I need to have another surgery? <span class="Apple-converted-space"> </span>What does this mean? <span class="Apple-converted-space"> </span>She told me to come back and we’ll have a chat but that they were scheduling me for another MRCP to try to figure out what’s going on. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">So we all (me, hubby, surgeon, and surgical fellow) all had a chat about all the possibilities and all the different plans depending on what the MRCP shows. So here I am waiting for the MRCP. But this definitely means we won’t be going home today. <span class="Apple-converted-space"> </span>The kiddos don’t know yet and are going to be sooo disappointed and sad. I’m just going to have to explain to them this it’s for the best and we need to make sure mommy is all good to go before she goes home. That way I won’t have to get home and turn right back around to come out here. <span class="Apple-converted-space"> </span>I hope I have the right words to help ease their concerns, anxieties, frustrations, and sadness when I talk to them a little later today. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">So there’s an update with what’s going on. Writing this out actually helps me ton, both mentally and emotionally. <span class="Apple-converted-space"> </span>Just taking the time to reflect on my experiences and appreciating the little things that make a big difference. <span class="Apple-converted-space"> </span>Like that I didn’t get all the way back to the hotel and have to turn around right away to come back. Or that I have my amazing husband here with me who is now allowed to be inside with me today. Or that I have such amazing support system at home. <span class="Apple-converted-space"> </span>Or that I have no stress about what I’m going to do about the kiddos. Or the house. Or the dogs. Or work. <span class="Apple-converted-space"> </span>I can focus on what’s going on right now with me and take care of that. <span class="Apple-converted-space"> </span>And that I was able to enjoy the cherry blossoms for a short time while waiting for the metro after landing in DC. <span class="Apple-converted-space"> </span>And all the spring flowers that are popping up around Maryland this time of year. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Anyway, thank you all for staying tuned. </span></p>Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-41368499832669274682021-01-18T12:46:00.003-08:002021-01-18T12:46:57.971-08:00Happy New Year!<p> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">Happy New Year!!</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">I hope everybody had great family time for the holidays even though family time might have looked a little different this time.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">In the midst of the holiday craziness, I was pursuing additional tests and such to try to figure out the abdominal pain issue once and for all. For a while it was getting better. The osteopathic manipulation seemed to be helping. Until about a month ago it happened again.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">At work.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">Debilitating.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">My hubby picked me up and drove me home.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">The pain subside mid day. I slept for several hours. Tried to hydrate as much as possible upon waking up. Are a light dinner and it started again. Ugh.</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">So the next day I called the GI doctor I saw in the hospital back in May. <span class="Apple-converted-space"> </span>Got a virtual appointment that afternoon with the NP. <span class="Apple-converted-space"> </span>After describing my symptoms and pain location she ordered an ultrasound and blood work. <span class="Apple-converted-space"> </span>Blood work looks pretty good. <span class="Apple-converted-space"> </span>But they did see gallstones on the ultrasound. <span class="Apple-converted-space"> </span>So she wants to schedule me for an EGD and HIDA scan. <span class="Apple-converted-space"> </span>I don’t feel super comfortable having them do an EGD since they don’t really know my anatomy, so I reached out to my surgeon at the NIH. <span class="Apple-converted-space"> </span>He’d like me to go out to Maryland as soon as COVID calms down a bit again so they can do these tests and try to figure out the source of my severe intermittent pain. <span class="Apple-converted-space"> </span>So that’s the plan. Hopefully I’ll be out there in a couple months. <span class="Apple-converted-space"> </span>And hopefully I don’t experience the pain again until we can figure this out. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">On a side note, life has been a bit crazy with the holidays, a wedding in the family, and my sons 6th birthday coming up. <span class="Apple-converted-space"> </span>I keep telling myself things will settle down after his birthday. But will it really? <span class="Apple-converted-space"> </span>We have projects we want to get done outside while weather is nice. <span class="Apple-converted-space"> </span>It seems there is always something. Do you ever feel that way? <span class="Apple-converted-space"> </span>Don’t get me wrong, we enjoy the little things in life through the craziness, but it would be real nice to just be and not feel like we need to be doing something all the time. <span class="Apple-converted-space"> </span>Is it just me? </span></p>Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-43089131983983391602020-09-04T17:25:00.003-07:002020-09-04T17:25:59.424-07:00NIH 1 year follow up<p> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">Three months ago I sat down and wrote a blog post. But I never actually posted it.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">In the moment I felt a bit crazy.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">I got self conscious and started worrying about what people would think of me.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">But today, I’m not concerned about it.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">I am transparent and honest and I am proud that I’ve found ways to help my body when nobody can really figure out the answers.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">So I’ve back posted 2 blogs.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">And here goes a current one.</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">I am currently in an airplane on my way home from Maryland. My 1 year post op follow up was long over due. <span class="Apple-converted-space"> </span>It’s actually been 18 months. That’s so hard to believe. <span class="Apple-converted-space"> </span>It’s been a rollercoaster to say the least. I’m taking every precaution I can to stay safe during COVID. I have a mask with a filter that is better than N95s, I wipe down all surfaces I’m going to touch. And I have hand sanitizer easily accessible of course. Anyway, I felt the need to mention all of the above because to be completely honest with you I was a bit worried going into the travel. Luckily, the flight to Maryland was half empty and I only had 2 people even remotely close to me. But now I sit in a package of sardines for the flight home. <span class="Apple-converted-space"> </span>I haven’t heard anybody cough or sneeze. And of course we all have our masks on. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Okay, back to the NIH visit. It was short and sweet with lab work, DEXA scan, and chat with Dr Davis and my dietician. <span class="Apple-converted-space"> </span>Lab work looks good. Iron levels are still slowly increasing. So they want me to keep up with my iron regimen. DEXA scan shows a slight decrease in density compared to my scan last year, but still well within normal range. I feel so good about that. I was a bit paranoid as I was an idiot right after my gastrectomy. <span class="Apple-converted-space"> </span>I knew I needed to take Calcium Citrate multiple times a day. <span class="Apple-converted-space"> </span>But I found the huge pills difficult to take and to remember 4 times a day was also difficult. So I found some chewable ones. Well, three months later when I go to reorder them I realize I ordered a different type of calcium! <span class="Apple-converted-space"> </span>Doh!! <span class="Apple-converted-space"> </span>I felt so stupid. Anyway, so bone density scan all good. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">I spoke with Dr Davis about my gallbladder vs other cause of the pain I’ve been having. <span class="Apple-converted-space"> </span>We both agree that we don’t think it’s a gallbladder thing. I explained some of the osteopathic manipulation I’ve been doing and he seems a bit intrigued. He said he has about a handful of patients that are having very similar experiences. <span class="Apple-converted-space"> </span>He asked that I keep him in the loop about it all because he would love to start reading up on it and be able to start recommending something similar to other patients if they have it available.</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">I won’t bore you with all the details but I did have the pain again about a week ago while my hubby and I were on an epic road trip for our 10 year anniversary. <span class="Apple-converted-space"> </span>Thankfully it only lasted less than an hour or so. As soon as it started I laid flat on my belly on a heating pad. And eventually was able to get comfortable enough to fall asleep. </span><span class="s2">🤷🏻♀️</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Just rolling with the process. <span class="Apple-converted-space"> </span>And hopefully I don’t actually go crazy while doing so. Haha. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"> </span></p>Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com1tag:blogger.com,1999:blog-7878241791514531991.post-84834491629451542712020-06-04T17:29:00.000-07:002020-09-04T17:29:58.997-07:00Feel Hungover<p> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">Osteopathic doctor warned me to drink lots of water and get lots of rest after that first manipulation appointment. Well, yesterday I worked and felt great the whole day. Today I woke up and feel like I have the worst hangover I’ve ever had.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">The headache. The nausea.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">Just feel like I’ve been run over by a semi truck. So in my mind right now I’m thinking between the osteopathic manipulation and the accupressure, something is changing in my body.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Stay tuned...</span></p>Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-89883169740990869742020-06-02T17:27:00.002-07:002020-09-04T17:29:08.076-07:00Osteopath<p> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">A couple weeks have gone by since my visit to the hospital.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">I’ve traveled through quite the mix of emotions during that time.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">The most prominent immediately after leaving the hospital was frustration.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">Frustration that nobody knows what to make of my situation.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">Frustration toward myself that I should communicate better.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">Frustration that my family feels helpless.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">And so many other things.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">Even though I had these intense feelings of frustration I kept telling myself to think positive.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">I know that medicine is a science and it is not black and white.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">I know that my knew body can be a challenge at times.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">I’ve always believed things happen for a reason - even shitty stuff happens for a reason.</span><span style="-webkit-text-size-adjust: auto; font-size: 17px;"> </span> <span style="-webkit-text-size-adjust: auto; font-size: 17px;">We might not always know that reason in the moment and that can be frustrating.</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1"> I have a strong tendency to worry. <span class="Apple-converted-space"> </span>When this pain happens, I worry about what is causing it. <span class="Apple-converted-space"> </span>I worry if I will need another surgery. <span class="Apple-converted-space"> </span>I worry about how much the medical bills are going to be. <span class="Apple-converted-space"> </span>I worry that it is going to happen again. <span class="Apple-converted-space"> </span>I worry about how these situations are going to affect my kids and the way they see the world or how they cope. <span class="Apple-converted-space"> </span>My mind just goes crazy with worry. <span class="Apple-converted-space"> </span>And I completely understand that worrying is not going to accomplish anything. <span class="Apple-converted-space"> </span>And I completely believe it causes more grief than is necessary. <span class="Apple-converted-space"> </span>I also believe the mind is a very powerful thing and such worrying can cause more physical ailments. <span class="Apple-converted-space"> </span>Because of this, I am constantly reminding myself not to worry. <span class="Apple-converted-space"> </span>I’m not a religious person but like I said I believe things happen for a reason and I believe in a higher power. <span class="Apple-converted-space"> </span>There is no need to worry. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">At this moment, we don’t know what is causing the pain, and that is okay. <span class="Apple-converted-space"> </span>Maybe we aren’t supposed to know right now. <span class="Apple-converted-space"> </span>What does it really matter if I need another surgery. <span class="Apple-converted-space"> </span>Is that really the worst thing that can happen? <span class="Apple-converted-space"> </span>I take care of kiddos everyday who have had countless amount of surgeries. <span class="Apple-converted-space"> </span>Poor kiddos. <span class="Apple-converted-space"> </span>And they have the best attitudes. <span class="Apple-converted-space"> </span>The cost of medical bills can be super frustrating, but what does worrying about it do. <span class="Apple-converted-space"> </span>Nothing. <span class="Apple-converted-space"> </span>And we are so fortunate to have good steady jobs. <span class="Apple-converted-space"> </span>And the ability to save and be prepared for these situations. <span class="Apple-converted-space"> </span>And what if it happens again? <span class="Apple-converted-space"> </span>Well, we will deal with it just like we have before. <span class="Apple-converted-space"> </span>And maybe that time will be the time somebody figures something out. <span class="Apple-converted-space"> </span>And for my kids. <span class="Apple-converted-space"> </span>They are resilient. <span class="Apple-converted-space"> </span>They are smart. <span class="Apple-converted-space"> </span>They will see my strength, courage, positivity, and grace though these situations. <span class="Apple-converted-space"> </span>It is so extremely freeing to let go of the things you cannot control. <span class="Apple-converted-space"> </span>No matter what happens, life will go on and we will get through it and will be stronger for it.</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">With all of that said I still find it important to be an advocate for myself and to research and talk with people in similar situations. <span class="Apple-converted-space"> </span>I’ve done some connecting with other people who have my genetic mutation and have had their stomach removed who also have had this weird abdominal pain. <span class="Apple-converted-space"> </span>Since doing so, I’ve remembered that my surgeon told me it is very common to have gallbladder issues after the removal of your stomach, but more so if you’re really over weight to begin with. If that’s the case you usually lose a larger amount of weight is a very short amount of time. Which can cause issues with your gallbladder. So he usually just takes the gallbladder out with the stomach in those patients. <span class="Apple-converted-space"> </span>At the time I was not a candidate for that. At least not on his recommendation. <span class="Apple-converted-space"> </span>And I agreed with him. I’d like to keep as many of my organs for a long as I possibly can. <span class="Apple-converted-space"> </span>But now I’m wondering if this is my issue. My most recent CT scan looks okay, but I’m wondering if I should pursue more imaging to rule my gallbladder out. <span class="Apple-converted-space"> </span>So while in the hospital a couple of weeks, I spoke to the hospitalist about possibly working up my gallbladder. He didn’t think it was a bad idea. <span class="Apple-converted-space"> </span>It would be good to rule out so we know for sure it’s not that. Cause that’s what we do in medicine. We make a list of all the things it could be so we can go through that list and cross the items off one by one. So he recommended I follow up with my PCP for pursuing the gallbladder as a cause to my pain. <span class="Apple-converted-space"> </span>Anyway, the hospitalist is actually a DO and practices osteopathic medicine as well. <span class="Apple-converted-space"> </span>I actually had an appointment with him today. <span class="Apple-converted-space"> </span>He spent over an hour with me. <span class="Apple-converted-space"> </span>He explained osteopathic medicine with info than I could ever absorb about our lymphatic system and the entire time doing osteopathic manipulative medicine with me today. <span class="Apple-converted-space"> </span>I’m still not entirely sure what exactly that means, but he had a lot of insight and spent a very long time with me working on fascia release in my abdomen, and lymphatic drainage. <span class="Apple-converted-space"> </span>I will definitely be going back.</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">My chiropractor also came to came for another acupressure session. <span class="Apple-converted-space"> </span>I know I’ve mentioned him before but can’t remember how in depth I went about acupressure and what he does. <span class="Apple-converted-space"> </span>Acupressure is very much like accupuncture, but there are no needles involved. <span class="Apple-converted-space"> </span>It is all based on the knowledge that we as humans are made up of energy. Just like everything else. <span class="Apple-converted-space"> </span>And sometimes things in our bodies or things that happen to our bodies cause a block in the flow of that energy. <span class="Apple-converted-space"> </span>The accupressure or accupuncture helps to relieve that blockage so the energy can flow more freely again. When we have blocked energy within our bodies it can cause symptoms like pain or nausea. <span class="Apple-converted-space"> </span>Way back shortly after having my stomach removed I was super nauseated. A lot of the time. I had more days of nausea than I had with no nausea. <span class="Apple-converted-space"> </span>Dr Berg came to see if there was anything he could do to help me. And I know this all sounds super hoaxie and totally hippie but I was so surprised at the sensations I was feeling as he was doing his work to release the blocked energy in and around my abdomen. <span class="Apple-converted-space"> </span>I remember after that first session feeling a world of difference for the better. I had a bit more energy. <span class="Apple-converted-space"> </span>I had a appetite and the nausea was markedly improved. I would go into more detail about the sensations I was feeling but I think you all would really think I’ve gone bat shit crazy. So let’s just leave it at that for now. <span class="Apple-converted-space"> </span>He did a lot of educating me on what he does and how the energy flows in our bodies and what helps with energy flow and what can cause blockages of that energy. <span class="Apple-converted-space"> </span>And in the several sessions we’ve had since that first day we’ve chatted more and more about it all including grounding our bodies to earth and earthing and all sorts of non western thinking. <span class="Apple-converted-space"> </span>Over time I’ve come to believe that this man is a true healer. He has a gift within his hands and I feel so fortunate to have crossed paths with him. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">But let’s back track for a minute to last week. <span class="Apple-converted-space"> </span>My chiropractor came, which was about a week after I was in the hospital. <span class="Apple-converted-space"> </span>I just felt he could help me. So he came and went and I felt a tad better in general. As the next week went by I just felt like there was a spot in my abdomen that just felt congested and stuck. Not really sure how else to describe it. <span class="Apple-converted-space"> </span>I made an appointment for today to see if we could relieve that feeling I’ve been having. <span class="Apple-converted-space"> </span>As he did his thing and felt around my belly he located several spots that caused discomfort on palpation. <span class="Apple-converted-space"> </span>Long story short he was able to help those spots. <span class="Apple-converted-space"> </span>To the point where the feeling of hollowness where my stomach used to be has changed. <span class="Apple-converted-space"> </span>The best way I can find to describe the feeling is full. It no longer feels there is a void there. </span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">So between the acupressure and the osteopathic manipulations, I think we might be onto something.</span></p><p class="p2" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px; min-height: 20.3px;"><span class="s1"></span><br /></p><p class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal; margin: 0px;"><span class="s1">Stay tuned...</span></p>Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-40931940133494671192020-05-15T15:12:00.003-07:002020-05-15T15:12:46.679-07:00Abdominal Pain AGAIN 🤦🏽♀️<div class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal;">
<span class="s1">Hello. <span class="Apple-converted-space"> </span>The last couple of months have been filled with spending lots of time at home. School from home. Kids spending lots of time with Grandma while my husband and I work. <span class="Apple-converted-space"> </span>It actually has been a nice time to slow down a bit. As much as I miss people and social interaction. <span class="Apple-converted-space"> </span>Yet at the same time I have felt just as busy as ever. Trying to do school at home for our daughter has been an interesting change. It’s been forcing me to do school work with our pre-kinder kiddo. So that’s an upside. <span class="Apple-converted-space"> </span>It has definitely been a challenge adding teacher to my already diverse resume. <span class="Apple-converted-space"> </span>No longer just a nurse, mom, wife, housekeeper, and chef. <span class="Apple-converted-space"> </span>Now I can say I have experience as a teacher, PE coach, principal, and referee. <span class="Apple-converted-space"> </span>Haha. </span></div>
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<span class="s1">With all that said it’s even more interesting while experiencing all this COVID stuff as an inpatient in the hosptial. <span class="Apple-converted-space"> </span>Today is Friday. On Wednesday afternoon I started having abdominal pain. Left work early and drove myself to the emergency room. I was really hoping it would pass so I sat in my car for about an hour and half to try to wait it out. <span class="Apple-converted-space"> </span>Which was not working. <span class="Apple-converted-space"> </span>So after 3 hours of intense pain I went in. <span class="Apple-converted-space"> </span>I found it interesting they weren’t screening for or testing people for COVID upon entering. Nor were they offering people masks. </span></div>
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<span class="s1">Anyway, sat in the lobby a couple of hours before being taken back. That was fun. Being in intense pain and vomiting in front of everybody in the lobby was a new experience for me. </span></div>
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<span class="s1">Met the ED Dr who I had seen last year once for this same type of abdominal pain. So it was nice to see a familiar face of someone who I remembered liking in the past. Got worked up with labs, urine, IV, pain meds and a CT scan. <span class="Apple-converted-space"> </span>Thank goodness for pain medication!! <span class="Apple-converted-space"> </span>So they found a UTI but that doesn’t really explain this intense abdominal pain. <span class="Apple-converted-space"> </span>So they decided to admit me under observation since I didn’t feel comfortable leaving. <span class="Apple-converted-space"> </span>The pain medicine was working but once it wore off the pain would come right back. This is by far the longest this type of pain has ever lasted. Something has to be wrong. The CT didn’t show anything. <span class="Apple-converted-space"> </span>Which I wasn’t surprised about. I mean it’s good it didn’t show anything but it would also be nice to have a definitive reason for this pain. <span class="Apple-converted-space"> </span>So they admitted me. <span class="Apple-converted-space"> </span>I had a consult with a general surgeon. There’s nothing they see wrong that requires surgical intervention. And the gastroenterologist said the same thing...nothing they feel they need to do right now. Especially since the pain was gone by the time I saw them. The good news is that now I’ve been established with both of these specialists so I can call them if I need to. </span></div>
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<span class="s1">I just got discharged a couple of hours ago and it felt amazing to get home and take a hot shower. <span class="Apple-converted-space"> </span>Kids are at Grandma’a house swimming so I have a little quiet time to myself to gather and compose my thoughts and feelings. <span class="Apple-converted-space"> </span>It’s these moments when I have this extreme pain I completely regret having my stomach removed. I start thinking all the reasons I shouldn’t have done it. It doesn’t take me long to snap out of it as I know deep down I did the right thing by removing it. <span class="Apple-converted-space"> </span>But I think it’s worth mentioning for any of you who might struggle with similar circumstances. </span></div>
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<span class="s1">So now I’m home feeling ready to conquer the world. Haha. I feel really good right now. But I am forcing myself to rest and eat. I only ate a very small dinner in 24 hours. And then so far today I’ve only eaten 2 very small meals. <span class="Apple-converted-space"> </span>It’s amazing how fast weight can drop off me these days if I miss a few meals. So wish me luck I’m that department. </span></div>
Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-33401272726426525072020-03-12T22:56:00.003-07:002020-03-12T22:56:50.853-07:00Endorphins<div class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal;">
<span class="s1">I love the rain. The way the desert smells when it rains is one of the best smells. <span class="Apple-converted-space"> </span>And it’s not often it rains for multiple days in a row here I. Phoenix so I’m fully enjoying it. Windows were open all day letting in all the fresh air. <span class="Apple-converted-space"> </span>The only bummer part about all the rain we’ve had this week is that I haven’t been able to hike. Usually my little 5 year old and I go out for a short hike a couple times a week. He loves it just as much as I do. And I’m super impressed with the difficulty levels he’s been able to keep up with. <span class="Apple-converted-space"> </span>This week, however, has not been a hiking kind of week. <span class="Apple-converted-space"> </span>So yesterday I decided to try a group Tabata class at our community center for the first time since surgery. I was super nervous about it as I know how challenging these classes can be for anybody. Let alone myself who hasn’t done any hardcore exercise in over a year. <span class="Apple-converted-space"> </span>I felt very motivated because I’m feeling so good and really want to gain some muscle mass back. <span class="Apple-converted-space"> </span>I had a water bottle full of slightly diluted Gatorade to try to prevent any hypoglycemia. And I ate a nice protein and carb filled meal right before hand. <span class="Apple-converted-space"> </span>And I did great! <span class="Apple-converted-space"> </span>I felt so good the entire time. And after felt amazing. My muscles felt pretty weak for half the day following. Nothing surprising there. <span class="Apple-converted-space"> </span>It felt like a weight had been lifted off my shoulders to know my body can handle this kind of stuff again. <span class="Apple-converted-space"> </span>So I’m super stoked to started really exercising regularly again. So stoked I decided to go back for a cardio class today. A little different than the Tabata obviously. <span class="Apple-converted-space"> </span>The Tabata class focuses more on strength training and building muscle. <span class="Apple-converted-space"> </span>But the cardio class kicked my butt a bit more. <span class="Apple-converted-space"> </span>Which also felt amazing. <span class="Apple-converted-space"> </span>I really went to try to combat the lactic acid build up in my very rested muscles. Haha. <span class="Apple-converted-space"> </span>I think it helped a bit but my body is SORE. <span class="Apple-converted-space"> </span>In places I’ve forgotten have muscle. It hurts so good. </span></div>
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<span class="s1">When I got home from my workout, I received an email that my one year follow up appointment has been postponed. My daughter, mom and myself were going to Maryland next week for my appointment. We were making a mini vacay out of it. And hoping to see cherry blossoms. But because of COVID19 the NIH is trying to free up resources in case they need to respond to this crazy pandemic. <span class="Apple-converted-space"> </span>My daughter is so bummed. <span class="Apple-converted-space"> </span>Being a 7 year old doesn’t help her understand the complexity of this entire situation. <span class="Apple-converted-space"> </span>I understand everybody is trying to do their part to prevent the virus from spreading with all the cancelled events and things. <span class="Apple-converted-space"> </span>But I do not understand the hysteria and rushing to the store for toilet paper among other things. <span class="Apple-converted-space"> </span>Wash your hands people. <span class="Apple-converted-space"> </span>And don’t flood the emergency rooms with things that are not an emergency. <span class="Apple-converted-space"> </span>Anyway, I digress. <span class="Apple-converted-space"> </span>Hopefully we can get my appointment rescheduled for a couple months from now and she can still go with me. </span></div>
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<span class="s1">Till next time...</span></div>
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Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-72447602540730144272020-02-09T14:52:00.004-08:002020-02-09T14:52:52.818-08:00Life.Is.Good.<div class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal;">
<span class="s1">It’s the beginning of February in Phoenix, Arizona and the weather this weekend has been amazing with high’s in the high 60’s/low 70’s. <span class="Apple-converted-space"> </span>The perfect time to embark on a dream that I’ve had for many many years - growing my own food/starting a garden. </span></div>
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<span class="s1">Over the years, we just haven’t felt quite ready to accomplish this for one reason or another. Plus, over the years my husband and I have had different ideas and goals on the topic. So it just hadn’t ever come to fruition. <span class="Apple-converted-space"> </span>On Friday, I was at work when I realized my husband got home early. And to be completely honest a teeny weeny bit annoyed as my mind got negative and I was thinking ‘ugh, he’s probably just relaxing and enjoying his Friday afternoon to himself’. <span class="Apple-converted-space"> </span>(I know, very lame of me. <span class="Apple-converted-space"> </span>But hear me out) While our amazing daughter was giving a very short presentation/speech in front of her entire school at an assembly. Mind you, she is not a public speaker. She has never been the one to enjoy being the center of attention with large groups of people (she has not problem being the center of attention at all times in a more intimate setting - haha). So this was kind of a big deal. And she volunteered to do the part at that. So I was and am very proud of her for this and was super bummed I’d be working instead of sitting front and center to cheer her on. So when I found out my wonderful husband was home instead of being at the school supporting our daughter I was a bit annoyed. <span class="Apple-converted-space"> </span>I chose to wait until I was home to say anything about it as I knew how bitchy it could come across if I sent a text ‘why aren’t you at the school?’ <span class="Apple-converted-space"> </span>Well, I got home to find out he had been out and about gathering all things needed to build my dream raised garden bed. <span class="Apple-converted-space"> </span>Which is something I obviously had no idea he was doing or even thinking of doing on this particular day. And this is only one of millions of reason my husband is the most amazing. </span></div>
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<span class="s1">So, now that I’ve digressed a bit, yesterday we built this garden bed of my dreams. And today we are getting the irrigation set up and filling it with all the good things needed for a flourishing edible garden. <span class="Apple-converted-space"> </span>I’ve always been a bit overwhelmed and paralyzed by the over analysis when thinking about gardening as I don’t have a green thumb and don’t really know the first thing about growing food. <span class="Apple-converted-space"> </span>But with a little practice on indoor plants and some research I am so excited!! <span class="Apple-converted-space"> </span>I’m excited to plant the seeds in the nutrient dense soil. <span class="Apple-converted-space"> </span>I’m excited to feel that souls in between my fingers. <span class="Apple-converted-space"> </span>I’m excited to see those little seeds blossom into little tiny plants. <span class="Apple-converted-space"> </span>I’m excited to spend more time outside nurturing these little plants while my kiddos play in the yard. <span class="Apple-converted-space"> </span>Being outside in the Arizona sun is one of the best things in life. </span></div>
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<span class="s1">Which is one reason I went on a hike this morning. So I’ve been going on these little mini hikes lately. Like a mile. Usually takes me about 20 minutes to get up the mountain and back down again. The first couple of times I had an issue with my blood sugar crashing as soon as I got back down the mountain. Thankfully I had some lemonade in the car and my family with me in case I needed help with anything. <span class="Apple-converted-space"> </span>But all was good as soon as my sugar came up. <span class="Apple-converted-space"> </span>I’m still in the very early stages of figuring out my new body and how it reacts to any sort of exercise. But it feels so good to be getting back to being active and enjoying the outdoors the way I’m used to. Which is why I was super stoked that I completed a 4 mile hike today. <span class="Apple-converted-space"> </span>I had diluted Gatorade in my water bottle to prevent the sugar drop. And I ate a good meal right before going with a good ratio of protein, fat, and carbs. </span></div>
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<span class="s1">So here we are, 2 weeks shy of a year post prophylactic total gastrectomy and Life. Is. Good. </span></div>
Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-79052440188321124232020-01-26T07:16:00.002-08:002020-01-26T07:16:25.562-08:00Iron Levels<div style="font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-family: inherit;">My first blog post of 2020. I got my iron levels drawn this last week. We’ve been keeping a close eye on them as they have been on the low side many times since surgery almost a year ago. Can you believe it’s been almost a year?! 12 months ago I was anxious as hell in mentally and physically preparing for the one of the biggest days of my life…getting my stomach removed. I had done a tone of research and felt pretty well prepared for what was to come. I was about 45 pounds heavier than I am currently. We were all saying farewell to my stomach with lots of food, drink, and parties. Sorry, I digress. </span></div>
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<span style="font-family: inherit;">Anyway, so far I’ve had 2 iron infusing over the last 11 months for low iron and iron store levels. Since they aren’t improving too much I am going to start taking a larger iron supplement. Which is totally fine. Obviously I was hoping my body would level itself out so I wouldn’t have to take more, but it’s fine. Maybe my body just needs more time to adjust to absorbing iron in this new way. Or maybe I’ll be taking a higher dose of iron for the rest of my life. Either way, it is what it is and it’s no biggie. When I look back to when I go the iron infusions at the NIH, I remember how amazing I felt afterward. Like, I didn’t realize how fatigued I was until I had so much energy and stamina after the infusing. So cross your fingers that increasing my oral intake of iron supplements with fix this problem. So this year can start off with more energy, productivity, and less winded play sessions with the kiddos. </span></div>
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<span style="font-family: inherit;">I am preparing to go back to Maryland for my 1 year post op visit. My 7 year old daughter has been begging me to go with me since the day I got back from surgery. She really wants to see the hospital, Maryland, Washington DC, and go on another plane ride. I love that she wants to travel. So we are planning on going in March during her spring break so she doesn’t have to miss any school. Another positive to that is that cherry blossom season usually starts mid march! Which I’m super stoked about. When I was there in March last year for my month post op visit, I was not feeling well or in any shape to go explore and see the beautiful trees unfortunately. So hopefully we get at least a glimpse of them this visit. It’s also kind of hit or miss for the weather in March. It could be really cold still or it could be really nice. My daughter loves the cold so either way will be fun. </span></div>
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<span style="font-family: inherit;">I’ve also learned that the NIH has started doing breast surveillance for their CDH1 patients as we have an increased risk of getting lobular breast cancer also. Which is amazing because this means I can get my yearly breast MRI done while I’m there instead of paying $1200 out of pocket at home to do it. I have yet to decide 100% what I’m going to do about this increased breast cancer risk. Initially when I first learned I had this CDH1 mutation I thought it was a no brainer…lets get rid of them and have reconstruction. But when you really get into the details of it, it’s a much harder decision. There are so many factors that come into play. Also, after having the prophylactic gastrectomy it’s difficult to fathom going through another major surgery. I’m definitely not planning on doing anything surgical this year and will just do my MRI and mammogram for screening. Hopefully by the end of the year I will have come to a more concrete decision. As for now, I’m still adjusting to this new life and body and hope to do some more traveling this year. </span></div>
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<span style="font-family: inherit;">Until next time…</span></div>
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Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com1tag:blogger.com,1999:blog-7878241791514531991.post-32214510638743210922019-12-30T22:12:00.001-08:002019-12-30T22:12:38.651-08:002019 Reflection<div class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal;">
<span class="s1">As the year comes to an end, I’ve found myself reflecting. Reflecting on things I’d like to do differently next year. <span class="Apple-converted-space"> </span>Reflecting on things I’ve loved about this year. <span class="Apple-converted-space"> </span>Reflecting on decisions that have been made this year. <span class="Apple-converted-space"> </span>Just really bringing a close to this year to make room for the year ahead. I don’t know that I really believe in New Years resolutions for a couple of reasons. One, I always feel like a failure if I don’t accomplish them. It’s just so much pressure. <span class="Apple-converted-space"> </span>Two, as the year comes to an end I hear people scrambling to get their resolution completed. I.E. my husband deciding to learn to ride a unicycle. Btw, this has been a resolution of his for several years and he still has yet to do it. Which, again, doesn’t make him a failure...it’s just what it is. The new year is just a continuation of life. And living our best life. I choose to look at it more like a friendly reminder of the things I’d like to accomplish and a perfect time to reflect on the previous year.</span></div>
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<span class="s1">And as I reflect, I’m reminded I’m not perfect. Nor has this last year been perfect. There have been many ups and many downs. <span class="Apple-converted-space"> </span>Which is life, right? <span class="Apple-converted-space"> </span>I have a tendency to really focus on the negative and dwell a bit. I’m not proud of this. And I am working on it. Learning to ride the wave of life as it is. Be thankful and grateful for all the ups and even the downs. Life would be so boring if it was great all the time. Haha. I tell myself during a low while trying to convince myself of that. <span class="Apple-converted-space"> </span>This year has be challenging and stressful to say the least. <span class="Apple-converted-space"> </span>So as I learn to give myself and my family grace, I choose to focus on the positives this year has brought. </span></div>
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<span class="s1">I no longer have to stress or worry that I will get this horrendous stomach cancer. <span class="Apple-converted-space"> </span>My body is adjusting so well to life without a stomach. It’s still so crazy to think about. <span class="Apple-converted-space"> </span>I have been able to spend an unmeasurable amount of time with the people I love most in this world, my hubby and kiddos. <span class="Apple-converted-space"> </span>I have learned so much about myself and my family on this crazy journey. <span class="Apple-converted-space"> </span>I am stronger and more patient than I have ever known. <span class="Apple-converted-space"> </span>It’s very difficult to show love and compassion when you’re not feeling your best. <span class="Apple-converted-space"> </span>My kiddos understand and comprehend more than we give them credit for. <span class="Apple-converted-space"> </span>They are truly thoughtful, caring and empathetic. <span class="Apple-converted-space"> </span>My husband is amazing, which is nothing new. <span class="Apple-converted-space"> </span>But he’s really stepped up in ways I could have never imagined. <span class="Apple-converted-space"> </span>And I’ve solidified that an untidy house drives new insane, I never want to be a stay at home mom, I’m stubborn as hell, and...I am so lucky in this life. </span></div>
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<span class="s1">So cheers to 2020. <span class="Apple-converted-space"> </span>It’s going to be an amazing year. <span class="Apple-converted-space"> </span>So many things to look forward too. </span></div>
Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-73782587055550941562019-12-26T22:11:00.000-08:002019-12-30T22:11:40.036-08:00Reflux...ugh<div class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal;">
<span class="s1">Our Christmas get together with hubby’s family last night was so much fun. Just good people, good food, good entertainment, and good fun. It’s always fun to see those we only see once a year. <span class="Apple-converted-space"> </span>Hearing how life is going and what they are up to. And then of course it’s awesome spending time with the ones we see more often. <span class="Apple-converted-space"> </span>Kiddos running around. 2 year old twins keeps everybody entertained at some point in the evening.</span></div>
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<span class="s1">As far as food goes, I found it very difficult to eat as frequently as I should. <span class="Apple-converted-space"> </span>Of course the food was delicious and I wish I could have eaten more. In hindsight I wish I would have made myself 2 plates. One for the moment everybody was eating. And the second for a couple of hours later. <span class="Apple-converted-space"> </span>I think that would have helped. <span class="Apple-converted-space"> </span>My saving grace was drinking milk before leaving my mother in laws house and then eating some pecans and pretzels in the car on the way home. <span class="Apple-converted-space"> </span>Still went to bed feeling like I didn’t eat enough.</span></div>
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<span class="s1">And late last night I woke up with reflux. Ugh. This happens every so often. Usually when I catch myself lying flat without realizing it. But this was not the case this time. <span class="Apple-converted-space"> </span>Maybe it was all the rich food my body is quite used to anymore. Maybe it was I didn’t eat right before bed like normally do. I’m convinced that eating before bed helps keep the bile at bay and prevents it from working it’s way up to my esophagus. <span class="Apple-converted-space"> </span>I find this interesting because a lot of stomachless people find eating to close to bedtime causes the reflux. <span class="Apple-converted-space"> </span>Anyway, I felt miserable most of the day. Since this isn’t avid reflux (from stomach acid), it is bile reflux. Which apparently is more alkaline. <span class="Apple-converted-space"> </span>So all the antacids you think to use/take when having heart burn don’t work at all. I actually think they make it worse. So I try the things other stomachless people have suggested. Such as Diet Coke, orange juice, or anything that is on the acidic side. <span class="Apple-converted-space"> </span>It seems these things work sometimes, but then other times not so much. And today was one of those times they didn’t do much for me. <span class="Apple-converted-space"> </span>So I just tried to take in what I could manage slowly all day while hanging out with the kiddos. We literally just played with new toys, played with the dogs, went for a walk. I don’t think I even got dressed until FSR into the afternoon. </span></div>
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<span class="s1">Fingers crossed tomorrow is a better day. Especially since it’s a work day. G’Night</span></div>
Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-88214401167374012862019-12-19T22:09:00.000-08:002019-12-30T22:10:35.309-08:00Christmas is next week!<div class="p1" style="-webkit-text-size-adjust: auto; font-size: 17px; font-stretch: normal; line-height: normal;">
<span class="s1">Christmas is next week! <span class="Apple-converted-space"> </span>And nope, I’m not ready. Christmas crafts are still sprinkled throughout the house. Although, we have made progress on all of them. Still waiting for several gifts to arrive on our doorstep and have a few last minute gifts to find. <span class="Apple-converted-space"> </span>But we’re getting there and I am not stressed about it AT ALL. <span class="Apple-converted-space"> </span>Managing my time wisely and rolling with the punches. We do have my daughters teacher gifts wrapped and ready to go. <span class="Apple-converted-space"> </span>Thanks goodness, since the last day of school before break is tomorrow. <span class="Apple-converted-space"> </span>So that’s a plus. </span></div>
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<span class="s1">The kiddos are super excited to see what Santa will bring them and to be spending so much time with loved ones. </span></div>
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<span class="s1">Eating is going great. I’m feeling great overall. <span class="Apple-converted-space"> </span>It’s so much easier to stay hydrated in the colder winter months. <span class="Apple-converted-space"> </span>I feel my energy improving each and every week, which is why I keep telling myself I need to start exercising again. I have been very lazy as far as that goes. <span class="Apple-converted-space"> </span>Even just some light yoga day to day would help my body, mind and soul so much. So I’m not entirely sure why I’ve been putting it off. <span class="Apple-converted-space"> </span>I guess I’m just having trouble prioritizing it again. <span class="Apple-converted-space"> </span>K. I’m going to get through the holidays and I’m going to start again. </span></div>
Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-30246484172181646222019-11-26T17:43:00.001-08:002019-11-26T17:43:09.068-08:00THANKSGIVING<div class="p1" style="-webkit-text-size-adjust: auto; color: #454545; font-size: 17px; font-stretch: normal; line-height: normal;">
<span class="s1">This is my first Thanksgiving since having my prophylactic total gastrectomy in February. <span class="Apple-converted-space"> </span>Thanksgiving has always been one of my favorite holidays. <span class="Apple-converted-space"> </span>I owe that all to my family. For as long as I can remember we spend the holiday in Kingman, AZ with my mom’s family. <span class="Apple-converted-space"> </span>For those of you who know about Kingman, you’re probably thinking ‘why would you want to spend any time there?’ <span class="Apple-converted-space"> </span>And it’s true. Most people know Kingman as the armpit of Arizona located on the way to Las Vegas. <span class="Apple-converted-space"> </span>It’s a small town with nothing super exciting to do. <span class="Apple-converted-space"> </span>But to be with family is all I need for Thanksgiving. It has always been super laid back and a time to catch up on everyone’s lives. </span></div>
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<span class="s1">Earlier this year I didn’t think I would be too excited about the food for Thanksgiving. Given nausea has been a pretty big issue for me. <span class="Apple-converted-space"> </span>As you know, that has gotten so much better. Last week I went the entire week without taking the Marinol (the only medication that actually helped with nausea for me). <span class="Apple-converted-space"> </span>That’s huge for me. <span class="Apple-converted-space"> </span>People in my CDH1 world have always said things get better and eventually you forget you don’t have a stomach. I had a hard time believing that in the early days. I just tried to take their word for it and go day to day. Now, when people who will be getting their stomachs remove ask what it’s like to live stomachless, I’m telling them the same things I had heard. <span class="Apple-converted-space"> </span>Most of the time I feel very normal. <span class="Apple-converted-space"> </span>As long as I eat every 2-3 hours and keep up with fluid intake, I feel great. <span class="Apple-converted-space"> </span>So this week being at my aunt and uncles house will be perfect. There is always yummy food to eat. </span></div>
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<span class="s1">Aside from Thanksgiving, the holiday chaos has officially begun at our house. After two whole weekends of putting up Christmas lights, they have been turned on. <span class="Apple-converted-space"> </span>It is almost complete with all the finishing touches. Holiday crafts are sprinkled all over the house awaiting to be completed. <span class="Apple-converted-space"> </span>Cookie baking parties and Christmas light viewing are making their way onto the calendar. <span class="Apple-converted-space"> </span>I’ve never been good at teacher gifts for my daughters school, so that is a goal for me this year. Nothing super extravagant, but something well put together and thoughtful. <span class="Apple-converted-space"> </span>And don’t forget about our elf who should be showing up any day now. <span class="Apple-converted-space"> </span>This is my favorite time of year despite all the chaos and stress. <span class="Apple-converted-space"> </span>It’s just so magical for the kiddos. I hope I can continue to live in the moment and enjoy all the precious little moments with my kiddos and those I love through this holiday season. <span class="Apple-converted-space"> </span>My husband can attest I’ve been a bit stressed lately. Time to take a chill pill and roll with the punches. I know he would appreciate it. </span></div>
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Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-85939700546491472142019-11-14T14:16:00.000-08:002019-11-14T14:16:07.432-08:00Time is going too fast<div class="p1" style="-webkit-text-size-adjust: auto; color: #454545; font-size: 17px; font-stretch: normal; line-height: normal;">
<span class="s1">I have 2.5 more weeks off from work and feel like it’s going way too fast. <span class="Apple-converted-space"> </span>Since I wrote last, things have been pretty up and down as per usual since getting my stomach removed. <span class="Apple-converted-space"> </span>Just a continuation of the roller coaster ride. <span class="Apple-converted-space"> </span>The last post I talked about be nausea and lack of appetite while also trying to gain some weight back. <span class="Apple-converted-space"> </span>That got better the second week. <span class="Apple-converted-space"> </span>I felt so good. <span class="Apple-converted-space"> </span>I got some projects done and got out of the house quite a bit. <span class="Apple-converted-space"> </span>Actually took a little easy bike ride with my 4 year old, which kicked my but a bit honestly. <span class="Apple-converted-space"> </span>But felt so good. <span class="Apple-converted-space"> </span>And last week was a blah week again. <span class="Apple-converted-space"> </span>Nauseated a lot of the time. <span class="Apple-converted-space"> </span>I got a massage and had acupressure, which I thought was going to help more than it did. <span class="Apple-converted-space"> </span>But still glad I did it. <span class="Apple-converted-space"> </span>And now, today, I’m feeling pretty good. <span class="Apple-converted-space"> </span>Just more of the same ol’ same ol’ with my new life. <span class="Apple-converted-space"> </span>I’ve been a little more active with the kiddos. <span class="Apple-converted-space"> </span>It seems to help with the nausea a lot. <span class="Apple-converted-space"> </span>So we play fetch or soccer in the back yard and I run around a little bit. <span class="Apple-converted-space"> </span>It also increases my appetite and gives me more tolerance for drinking larger amounts of water at a time. </span></div>
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<span class="s1">I have gained about 4lbs back which is really exciting for me. <span class="Apple-converted-space"> </span>My persistence is paying off a bit. <span class="Apple-converted-space"> </span>I had a visit with my primary care provider to talk about my iron levels. <span class="Apple-converted-space"> </span>They were trending up until this last visit to the NIH in which they dropped a very large amount. <span class="Apple-converted-space"> </span>Which seemed weird to me and to my surgical team. <span class="Apple-converted-space"> </span>So they recommended I follow up with my PCP. <span class="Apple-converted-space"> </span>After much discussion and reasoning with her, she has agreed to order blood to keep an eye on it. <span class="Apple-converted-space"> </span>Thank goodness. <span class="Apple-converted-space"> </span>She was trying to send me to a hematologist (blood Dr) so they could keep an eye on it. <span class="Apple-converted-space"> </span>I strongly disagree with this. <span class="Apple-converted-space"> </span>My team at the NIH is keeping such a close eye on all my labs including nutritional labs and the only thing I think I need to looking at is my iron and related levels while I’m not at the NIH since it’s been a little all over the place. <span class="Apple-converted-space"> </span>I’m so relieved she agreed to do this. <span class="Apple-converted-space"> </span>Was starting to think I was going to need to see another primary care provider or try out a more wholistic provider. <span class="Apple-converted-space"> </span>I’ve been talking about going to see a doctor that practices Functional Medicine. <span class="Apple-converted-space"> </span>I’ve just been dragging me feet. <span class="Apple-converted-space"> </span>I’m really not wanting to spend a ton of money, just because we are cheap. <span class="Apple-converted-space"> </span>And I know it’s an investment in my health, but when insurance doesn’t cover it at all it adds up real quick. Anyway, I have the name of someone I’m interested in. <span class="Apple-converted-space"> </span>Also, I feel I’ve been doing really well, so why go see them now. <span class="Apple-converted-space"> </span>I go back and forth about it in my head all the time, hence me dragging my feet. </span></div>
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<span class="s1">I can’t believe Thanksgiving is just 2 weeks away. <span class="Apple-converted-space"> </span>This time last year I was basking in the joy of just eating whatever I wanted whenever I wanted. <span class="Apple-converted-space"> </span>Honestly, engorging myself at times. <span class="Apple-converted-space"> </span>And this year I can’t complain at all. <span class="Apple-converted-space"> </span>I tolerate all foods. <span class="Apple-converted-space"> </span>I have been tolerating whole fresh foods best, which is great because I love it. <span class="Apple-converted-space"> </span>But I haven’t found a food I can’t eat right now. <span class="Apple-converted-space"> </span>It’s all about portion control. <span class="Apple-converted-space"> </span>If I want dessert, I eat dessert. <span class="Apple-converted-space"> </span>Stuff that is really sweet, I usually just take a bite or two. <span class="Apple-converted-space"> </span>Other stuff that isn’t so sweet, I can eat much more of. <span class="Apple-converted-space"> </span>It’s definitely the force healthy diet I thought it would be. <span class="Apple-converted-space"> </span>Which is totally fine with me. <span class="Apple-converted-space"> </span>It’s like my body is just more sensitive now. <span class="Apple-converted-space"> </span>Like when a food makes me feel good, I can feel it better if that makes sense. <span class="Apple-converted-space"> </span>Or on the flip side, if a food makes me feel like crap, I also feel that better than I could have before. <span class="Apple-converted-space"> </span>Being home from work has kind of made my eating day to day a bit mundane. <span class="Apple-converted-space"> </span>Just the same things over and over again. <span class="Apple-converted-space"> </span>Just because I know what I like and what works really well for me. <span class="Apple-converted-space"> </span>But the last couple of days I’ve gone out to lunch with friends and such and I’ve very much enjoyed it. <span class="Apple-converted-space"> </span>We chose restaurants that are so fresh and serve whole foods cooked in really healthy yummy ways. <span class="Apple-converted-space"> </span>Which is probably contributing to me feeling so good. <span class="Apple-converted-space"> </span>It’s amazing too because when I eat food like that I am able to eat so much more of it. <span class="Apple-converted-space"> </span>I had been steering clear of veggies too much for so long because I was worried about more weight loss. <span class="Apple-converted-space"> </span>But now I know my body thrives on good food and I’m able to eat more when I feel good. <span class="Apple-converted-space"> </span>Anyway, I’m rambling now. <span class="Apple-converted-space"> </span>So I’m excited for Thanksgiving food and being able to just east turkey with all the fix-ins all day long. <span class="Apple-converted-space"> </span>And hopefully be able to enjoy a bit of my grandma’s homemade dessert, whichever she chooses to make this year. <span class="Apple-converted-space"> </span>And my uncle’s homemade rolls. <span class="Apple-converted-space"> </span>I could go on and on about it. </span></div>
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<span class="s1">Anyway, I’ll make sure to write again just after Thanksgiving, unless there is something exciting that happens again before then. <span class="Apple-converted-space"> </span></span><span class="s2">♥️</span></div>
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Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-2938447053627360132019-10-27T07:45:00.001-07:002019-10-27T07:45:11.366-07:00HALLOWEEN IS HERE<div style="font-size: 12px; font-stretch: normal; line-height: normal;">
<span style="font-family: inherit;">It’s been a little over a week since this last surgery. And although I’m feeling really good, I’ve been reminded this week that I just had surgery. Haha. My mind wants me up and being productive. I have 6 weeks off and I have so much I can accomplish in that time! But my body keeps giving me subtle reminders to take it easy and rest. It’s the intermittent nausea and total lack of appetite. Real bummers. No, but really, I feel I’m doing really well and can’t complain. The one thing I have been very adamant about this week is eating every 2 hours so I can gain some weight back. I lost 6lbs through all of this. Between the pain and then having surgery. I gained a couple pounds back within a few days to just then lose it again. My weight is not bouncing back quite like I thought it would. So I’m just going to continue pushing through with high protein and high calorie foods to get this weight back on. To bad I can't just chow down on the Halloween candy. Haha Wish me luck.</span></div>
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<span style="font-family: inherit;">In other news, the kids and I have been preparing for Halloween. We didn’t decorate this year at all just because I didn’t feel like it. Instead we spent an entire day making Halloween cookies and decorating them. While Emma was at school for a half day, Owen and I made the sugar cookies. He loved rolling out the dough and using cookie cutters to produce bats, witch hats, cats, pumpkins, and ghosts. When Emma got home we made royal icing and had a blast making the different colors and piping them onto the cookies. Once we got the right consistency for the icing Emma did an amazing job decorating. Owen had so much fun caking on the icing and then drowning the cookies in Halloween inspired sprinkles. As much fun as we had this day did wear me out a bit. I made sure the following day I had nothing on my agenda. Well, nothing except cleaning up the kitchen from all this cookie fun. Needless to say, I waited for Matt to be home to embark on pumpkin carving.</span></div>
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<span style="font-family: inherit;">HAPPY HALLOWEEN! Enjoy your week and maybe next week I’ll have more to chat about. </span></div>
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Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-26150015475717902952019-10-22T16:52:00.003-07:002019-10-22T16:52:53.191-07:00Feels So Good to Be Home<div class="p1" style="-webkit-text-size-adjust: auto; color: #454545; font-size: 17px; font-stretch: normal; line-height: normal;">
<span class="s1">Okay, let’s back track a bit. <span class="Apple-converted-space"> </span>Surgery was schedule for 2pm on Friday afternoon, which meant I was allowed to sleep at the lodge with Matt on Thursday night. <span class="Apple-converted-space"> </span>Thank goodness! <span class="Apple-converted-space"> </span>We both got a restful sleep and were ready for Friday. <span class="Apple-converted-space"> </span>They still wanted me to be NPO at midnight which I asked the anesthesiologist about at my pre-anesthesia appointment on Thursday. <span class="Apple-converted-space"> </span>She told me what I already know…technically it’s no solids 6 hours before and no clears 2 hours before. <span class="Apple-converted-space"> </span>So my grand plan was to eat breakfast in the morning and then be NPO. <span class="Apple-converted-space"> </span>Well, I woke up Friday morning second guessing this grand plan because I know how it works in the OR. <span class="Apple-converted-space"> </span>There is always a chance they would want to take me sooner if there’s an opening in the schedule and the docs are available. <span class="Apple-converted-space"> </span>And I did not want to be the nurse patient who didn’t listen to instructions holding up the procedure. <span class="Apple-converted-space"> </span>So I just took some sips of water and called it a day. <span class="Apple-converted-space"> </span>In the morning I kept thinking “ugh, being NPO sucks” and then it dawned on me. <span class="Apple-converted-space"> </span>I have been forcing myself to eat every 2 hours and drink all day long for nearly 8 months now. <span class="Apple-converted-space"> </span>And now they are giving me permission to stop it all for half a day and I’m complaining about it. <span class="Apple-converted-space"> </span>What was I thinking? <span class="Apple-converted-space"> </span>This was a dream! <span class="Apple-converted-space"> </span>So I thoroughly enjoyed not having to eat or drink anything for several hours. <span class="Apple-converted-space"> </span>My mind didn’t have to be preoccupied with what I should be drinking or what my next meal was going to be. <span class="Apple-converted-space"> </span>I kind of enjoyed just doing nothing. <span class="Apple-converted-space"> </span>Matt on the other hand was getting a bit antsy, so I kept sending him to do little things went once in a while. <span class="Apple-converted-space"> </span>Then, I was starting to think things like “what are we doing here? <span class="Apple-converted-space"> </span>I feel great.” <span class="Apple-converted-space"> </span>My mind goes to crazy places people. But I kept reminding myself we were there for a reason we were going to figure out what was going on. <span class="Apple-converted-space"> </span>Fast forward to pre-op time. <span class="Apple-converted-space"> </span>We’re sitting in pre-op talking with the anesthesiologists and nurses when around the corner comes my surgeon, Dr Davis. <span class="Apple-converted-space"> </span>You see, his wife just had their third baby on Tuesday morning and he was supposed to be at home with his family, not at the hospital with us. <span class="Apple-converted-space"> </span>So, if you know me at all you can imagine I immediately got teary eyed. <span class="Apple-converted-space"> </span>All the nerves of having a surgeon I don’t really know, but trusted because Dr Davis trusts him, just melted away. <span class="Apple-converted-space"> </span>All the doubts of being there…gone. <span class="Apple-converted-space"> </span>He told us he saw a spot on my CT, which I had the day prior, that looked suspicious for probably causing my pain. <span class="Apple-converted-space"> </span>So I felt very good going in to surgery that we were going to figure this out and things will be great. </span></div>
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<span class="s1">Surgery went very well. <span class="Apple-converted-space"> </span>He found the spot he had seen on the CT. <span class="Apple-converted-space"> </span>He thought it was going to be a lot worse but ultimately it was an adhesion that attached two parts of my small bowel, which he said could definitely be causing intermittent partial small bowel obstructions. Which could definitely have been causing my pain. <span class="Apple-converted-space"> </span>So he got rid of that and fixed my umbilical hernia. <span class="Apple-converted-space"> </span>I stayed admitted at NIH for a couple of nights just to make sure my pain was under control before flying back home. <span class="Apple-converted-space"> </span>Other than being sore, it’s been easy peasy compared to my gastrectomy. <span class="Apple-converted-space"> </span>On Sunday, I was feeling so good we went sight seeing in DC for a few hours. <span class="Apple-converted-space"> </span>Visited a couple museums we hadn’t been to before. <span class="Apple-converted-space"> </span>All in the pouring rain. <span class="Apple-converted-space"> </span>We had a good size umbrella to share but boy oh boy we did not have the right shoes. <span class="Apple-converted-space"> </span>By the end of the few hours our shoes were soaking wet and we were both ready to get back to the hotel to dry of and warm up. </span></div>
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<span class="s1">Flight home went by fast. <span class="Apple-converted-space"> </span>Matt was flying standby again, thanks to my aunt. <span class="Apple-converted-space"> </span>And he got on the flight! <span class="Apple-converted-space"> </span>Woohoo! <span class="Apple-converted-space"> </span>He was literally the last person the the plane. <span class="Apple-converted-space"> </span>And to make things better, the seat next to me was empty. <span class="Apple-converted-space"> </span>So anyway, flight was good. <span class="Apple-converted-space"> </span>And we are so glad to be home again. <span class="Apple-converted-space"> </span>The last week has been quite the whirlwind. <span class="Apple-converted-space"> </span>So now it’s time to rest and heal. <span class="Apple-converted-space"> </span>Which is going to be very challenging for me for 6 weeks! <span class="Apple-converted-space"> </span>I’m hoping to get some quiet projects done that I did not have the energy to do when I was off 8 weeks with the original surgery. <span class="Apple-converted-space"> </span>Like try to get a couple of my annual photos books complete that I’m super behind on. <span class="Apple-converted-space"> </span>I’m still working on 2016’s! </span></div>
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<span class="s1">Anyway, I feel like rambling now. So, till next time. </span></div>
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Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-76807309524711842572019-10-16T12:56:00.000-07:002019-10-16T12:56:10.090-07:00Beyond Grateful For Our Village<div class="p1" style="-webkit-text-size-adjust: auto; color: #454545; font-size: 17px; font-stretch: normal; line-height: normal;">
<span class="s1">Some of you know this already, but I’m on my way back to the NIH today. In the last 2 weeks these belly pain episodes have only gotten more frequent. <span class="Apple-converted-space"> </span>This pain is difficult to describe with words. Just know if comes on pretty fast and is completely debilitating. <span class="Apple-converted-space"> </span>When it’s happened at work I have had to go ly down and try to work through it. It’s too bad to even get in the car and drive home at that moment. Thankfully the last few have only lasted about an hour or so. Last week it happened 3 or 4 days in a row so my surgeon got a bit concerned. <span class="Apple-converted-space"> </span>He’s worried I’m having intermittent partial small bowel obstructions that are resolving on their own. His words “it’s good they are resolving on their own. <span class="Apple-converted-space"> </span>That’s fine until it’s not”. <span class="Apple-converted-space"> </span>He’s doesn’t really know what’s causing this but is thinking it’s adhesions. <span class="Apple-converted-space"> </span>Anytime you have abdominal surgery you are risk for developing adhesions. <span class="Apple-converted-space"> </span>When his nurse coordinator called me yesterday and asked “can you fly out today?” I was a bit shocked. So we settled on the next day (today) <span class="Apple-converted-space"> </span>So I’m currently on the plane and am planning on going back into the OR on Friday. He wants to do a diagnostic laparotomy to have a look see in my belly to see if they can figure out what is going on. Fingers crossed it is something simple like adhesions they can just fix and be done with it. <span class="Apple-converted-space"> </span>He’s going to fix my umbilical hernia at the same time. Who knows, maybe that is the root cause of all these issues. We won’t know until we know. </span></div>
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<span class="s1">I am just so grateful to have such an amazing team looking after me. I was actually beginning to feel like I was going crazy with these pain episodes. <span class="Apple-converted-space"> </span>My dietician and I couldn’t find any correlations with food or drink intake. Nothing I tried would make it any better or go away faster. It just seemed to be on its own course and I just had to hope it wouldn’t last long. <span class="Apple-converted-space"> </span>It was a huge relief when my surgeon told me it he was concerned and thought I should fly back out sooner than later. <span class="Apple-converted-space"> </span>As much as I hate the idea that I need another surgery and that I have to take 6 more weeks off from work, I have come to terms with it and am ready to figure this shit out. </span></div>
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<span class="s1">I am also so fortunate and grateful to have such an amazing support system. <span class="Apple-converted-space"> </span>Yesterday, when I talked to my bosses at work, they didn’t even bat an eye when I told them I needed to get on a plane the next day. Even in the midst of our short staffed unit and our busy schedule. <span class="Apple-converted-space"> </span>Their last words were “remember...the most important thing is taking care of you”</span></div>
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<span class="s1">And the same goes for my family. <span class="Apple-converted-space"> </span>I had a couple conversations with my husband before ultimately deciding this was the best thing to do. On the same page from the beginning. And my mother-in-law, without any hesitation, came to our house at 6 am this morning to stay with the kiddos until we get home. <span class="Apple-converted-space"> </span>And she is not a morning person. <span class="Apple-converted-space"> </span>Haha. We don’t have a definitive day to go home as it depends on what happens in the OR. But we are all hopeful it’ll be by early next week. </span></div>
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<span class="s1">To top it off, flights were insanely expensive with les then 24 hours to take off. My aunt who works for American Airlines was able get Matt a buddy pass. <span class="Apple-converted-space"> </span>And he got on my same flight with no issues. It’s really all come together nicely at such short notice. </span></div>
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<span class="s1">Anyway, this affects so many more people (family, friends, and work) than I’ve mentioned here and I am so grateful to each and every one of them. <span class="Apple-converted-space"> </span>It really does take a village. <span class="Apple-converted-space"> </span>I can’t imagine having a better one. </span></div>
Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-29912736730796515802019-10-09T08:51:00.001-07:002019-10-09T08:51:09.015-07:00Belly Pain<div class="p1" style="-webkit-text-size-adjust: auto; color: #454545; font-size: 17px; font-stretch: normal; line-height: normal;">
<span class="s1">Since my last post a couple of weeks ago my weight has been all over the place. I had gained the 2 lbs back. Woohoo!! <span class="Apple-converted-space"> </span>And then I got a respiratory virus which had me coughing crazy amounts. Stepped on the scale at one point to see if lost 4 more lbs. <span class="Apple-converted-space"> </span>I’m not stressing about it at all because I know I’ll bounce back pretty quickly. <span class="Apple-converted-space"> </span>I have seasonal allergies and asthma and this time of year in AZ just gets me every time. So last night was the first night I’ve actually got a good night sleep for about a week because of all the coughing. Despite all the drugs you can imagine. <span class="Apple-converted-space"> </span>And to top it off I’ve now had 2 more episodes of this extreme abdominal pain. Last week it was not letting up at all and I ended up going to the emergency room. Had a CT and everything looked normal. The Dr gave me a script for an antispasm thinking it might help the next time this happens. <span class="Apple-converted-space"> </span>So yesterday when it came on again I took it. Pain was gone after 2 hours of taking it. So hard to say if it actually did anything or if it was just the process and a coincidence. I won’t bore you if all the details of these pain episodes. Just know I’ve been in very close contact with my surgical team and we are actively trying to solve the puzzle. <span class="Apple-converted-space"> </span>So it’s been a crazy couple of weeks, hence not posting until today.</span></div>
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<span class="s1">I will add however than I’ve done some yoga at home a couple of times since my last post. On the days I’ve been feeling good I’ve found videos on YouTube and did them at home with my 4 year old. And I’m definitely going to be practicing yoga more. <span class="Apple-converted-space"> </span>It’s pretty awesome. And my 4 year old loved it too. </span></div>
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<span class="s1">So stay tuned. </span><span class="s2">🤞🏻</span><span class="s1"> the pain doesn’t happen again but if it does the medicine actually does help and that we can figure out what the heck is going on. </span></div>
Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0tag:blogger.com,1999:blog-7878241791514531991.post-16269936357244256002019-09-23T14:34:00.001-07:002019-09-23T14:34:07.314-07:00To Exercise or Not to Exercise<div class="p1" style="-webkit-text-size-adjust: auto; color: #454545; font-family: ".SF UI Text"; font-size: 17px; font-stretch: normal; line-height: normal;">
<span class="s1" style="font-family: ".SFUIText"; font-size: 17pt;">Happy Monday everyone! <span class="Apple-converted-space"> </span>It’s been a pretty normal week for me. <span class="Apple-converted-space"> </span>Just really listening to my body and resting when it tells me to do so. So Thursday I rested a lot. Which totally prepared me for the busy weekend. <span class="Apple-converted-space"> </span>2 birthday parties in one weekend for my daughter to attend was a bit insane, but fun nonetheless. Emma had a blast. <span class="Apple-converted-space"> </span>Life is getting back to its normal craziness for us. Go go go. But I’m trying really hard to keep everything relaxed and enjoy it all. Instead of running around like a chicken with my head cut off like I used to do. That’s just not good for anybody. </span></div>
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<span style="font-family: ".SFUIText"; font-size: 17pt;">The last few weeks I’ve really been thinking about incorporating more exercise into my daily routine. So I’ll do an easy 20ish minute body weight workout here and there. In which I’m pretty sore the next day and it’s feel oh so good.</span><span style="font-family: ".SFUIText"; font-size: 17pt;"> </span> <span style="font-family: ".SFUIText"; font-size: 17pt;">But I have not made it a habit or routine by any means. Like I’ve probably actually done this like 2 days in the last couple of weeks. Just easing myself into it.</span><span style="font-family: ".SFUIText"; font-size: 17pt;"> </span> <span style="font-family: ".SFUIText"; font-size: 17pt;">So when I stepped on the scale yesterday I was a bit surprised to find I lost another 2 pounds. Disappointed really. I don’t feel I’ve been expending more energy. When I really sit back to reflect I realized I’ve probably been a little more lax on eating.</span><span style="font-family: ".SFUIText"; font-size: 17pt;"> </span> <span style="font-family: ".SFUIText"; font-size: 17pt;">I still eat constantly but if I miss a ‘meal’ I don’t fret about it. And I’ve been eating more fruits and veggies because they make me feel good.</span><span style="font-family: ".SFUIText"; font-size: 17pt;"> </span> <span style="font-family: ".SFUIText"; font-size: 17pt;">So I guess I shouldn’t have been surprised to see the scale yesterday morning. But it is a friendly reminder that I still need to work hard everyday. I need to be vigilant with eating and hydrating. And I know most people would kill to have the problem of not being able to gain weight. The grass is always greener, right?</span><span style="font-family: ".SFUIText"; font-size: 17pt;"> </span> <span style="font-family: ".SFUIText"; font-size: 17pt;">I never thought in a million years I would ever have to work hard to gain weight. And yet, here I am. And it’s not all it’s cracked up to be.</span><span style="font-family: ".SFUIText"; font-size: 17pt;"> </span><span style="font-family: ".SFUIText"; font-size: 17pt;"> </span><span class="s1" style="font-family: ".SFUIText"; font-size: 17pt;"></span></div>
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<span class="s1" style="font-family: ".SFUIText"; font-size: 17pt;">So just to give you all an idea. Before surgery I gained 20 lbs. <span class="Apple-converted-space"> </span>I didn’t really intentionally gain this weight but I ate whatever I wanted whenever I wanted. I knew I wanted to enjoy food as much as possible before surgery. I didn’t know how long it was going to take me to really enjoy food again. So no regrets there. And since surgery I have now lost 46 lbs. <span class="Apple-converted-space"> </span>So I’m officially considered underweight with the BMI scale (don’t get me started on my feeling about this scale). So if I can gain these 2 recently lost pounds back I will be a happy camper. <span class="Apple-converted-space"> </span>And when I learn how to incorporate more exercise without losing more weight hopefully I can put on a bit more muscle and then I’ll really be a happy camper. It’s insane how fast you lose muscle mass. <span class="Apple-converted-space"> </span>So I’m thinking of practicing yoga for stretching, strength and stamina. <span class="Apple-converted-space"> </span>I’ve been playing with this idea in my head for a few weeks now, so maybe one of these days I’ll actually start. </span></div>
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<span class="s1" style="font-family: ".SFUIText"; font-size: 17pt;">Oh, and as for the abdominal pain from last week. <span class="Apple-converted-space"> </span>I’m still talking with the surgical team to figure out what it could have been. We’re bouncing around with a few ideas. But nothing concrete yet. <span class="Apple-converted-space"> </span>I’ll keep you posted. </span></div>
Courtney Osselaerhttp://www.blogger.com/profile/05078500815664515430noreply@blogger.com0