In anticipation of my appointment with a gastroenterologist, I was feeling a bit anxious, as I have no idea what experience she has with this gene. The idea in my head is that it doesn’t really matter how much she knows about it, she can still perform my EGD and follow the guidelines by doing a ton more biopsies. She came very highly recommended by a couple people and they are confident if she doesn’t know about this she will advocate and research for me.
Well, Matt and I were very underwhelmed after meeting with her today. She has never heard of this gene mutation and shows no interest in trying to figure it out with us. She, like everybody else, was shocked that they are recommending a PTG and suggested getting a second opinion (which as you know from a previous post we have done). This Dr is close to our house so I figured at least she could do my EGD so we wouldn’t have to travel as far. But after meeting with her we just did not have a good feeling about it and decided to just make the drive for somebody who has actually had patients with this gene mutation.
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